Copyright © 2003 The Diabetes Insipidus Foundation, Inc.

 

Online Chat Forums or E-Groups

Diabetes_Insipidus Welcome to the International Rare Disease Support Network's support group for people affected by "Diabetes Insipidus." This group is open to anyone interested in making friends, sharing information and support with others affected by this disorder.
DiabetesInsipidus Provides information and support to professionals and lay people concerning all four forms of Diabetes Insipidus: neurogenic (central/pituitary); nephrogenic (vassopressin-resistant); dispogenic; and gestagenic/gestational DI. Promotes discussion between the lay and professional communities.
DInsipidus This e-group is for patients and family members of patients diagnosed with diabetes insipidus.
Diabetes Insipidus UK Diabetes Insipidus UK has been set up for people in the UK who suffer from Diabetes Insipidus or their families.
Insipidus UK This friendly group has been set up for sufferers of all types of Diabetes Insipidus and also for their families and friends. We also would welcome anyone from the medical profession who has an interest in Diabetes Insipidus who wishes to join this group.
Although UK based, this group welcomes anyone from the UK and internationally. Please feel free to join.
Nephrogenic DI Network This e-group is dedicated to helping people who have NDI and their families.

Organizations and Online Information

Australian Pituitary Foundation Ltd. Australian Pituitary Foundation Ltd.
PO Box 4138
Oatley West NSW 2223
Australia
Ph:61-2-9594-5550
Email: pituitary@bigpond.com 
Internet: http://www.pituitary.asn.au/ 
The Australian Pituitary Foundation provides information and support for individuals and families dealing with diseases and disorders relating to the pituitary gland, including central diabetes insipidus.
Diabetes_Insipidus Foundation (DiF) Diabetes Insipidus Foundation (DiF)
c/o Mike Gandrud
1232 24th Streeet
Ames, IA 50010 USA
"Information" link on the Contact Us page.
The Diabetes Insipidus Foundation provides information and support for individuals and families with diabetes insipidus; they serve nephrogenic, neurogenic (central), and gestational DI, as well as, primary polydipsia. A quarterly newsletter "Endless Water" provides medical reports, patient perspectives, and other links. 
Disorder-Specific Survival Kit: Nephrogenic Diabetes Insipidus Disorder-Specific Survival Kit: Nephrogenic Diabetes Insipidus
The University of Washington
Adult Metabolic Transition Project
Email: http://www.depts.washington.edu/transmet/The%20process/ndi.htm 
Provides extensive information and dietary guidelines for people with NDI.
Drug Prices and Information Drug Prices and Information - Helping you locate the best prices and information.
Gene Reviews Focuses exclusively on NDI. GeneReviews provides information about selected national organizations and resources.
The Histiocytosis Association of America

The Histiocytosis Association of America
332 North Broadway
Pitman, New Jersey 08071
Telephone: 856-589-6606
Toll Free: 800-548-2758 (US and Canada only)
Fax: 856-589-6614
Email: jmt4histio@aol.com  
Internet: http://www.histio.org/ 
The Histiocytosis Association of America is an international partnership of patients, families, physicians, and friends. This nonprofit organization promotes scientific research into the histiocytoses and works to educate and promote education related to the histiocytoses. Some people who have histiocytosis also have diabetes insipidus.

Kidney & Urology Foundation of America The leader in its field for over 50 years, the Kidney & Urology Foundation of America is dedicated to helping the more than 70 million Americans who suffer from kidney, urologic, and related diseases, and to fostering ground-breaking research into new and better treatments.
MedicAlert Foundation MedicAlert® protects and saves lives by relaying identification and vital medical information in an emergency, via our 24-hour emergency response center.
MedlinePlus Health Information A health service of the U.S. National Library of Medicine and National Institutes of Health.
Nephrogenic Diabetes Insipidus Foundation (NDIF)

Nephrogenic Diabetes Insipidus Foundation (NDIF)
Main Street
P.O. Box 1390
Eastsound, WA 98245
Phone: 888-376-6343
Fax: 888-376-6356
Email: info@ndif.org 
Internet: http://www.ndif.org 
The NDI foundation promotes information distribution and research on nephrogenic diabetes insipidus. Its website provides a bibliography of articles about NDI. Medical alert cards for NDI are available through the website.

National Institutes of Health (NIH) Entry into the U.S. Department of Health and Human Services National Institutes of Health website.
National Institues of Health National Library of Medicine National Institutes of Health National Library of Medicine link to diabetes insipidus information.
The National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)

The National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)
3 Information Way
Bethesda, MD 20892-3560
Phone: 800-891-5390 or 301-654-4415
Fax: 301-907-8906
Email: nkudic@info.niddk.nih.gov 
THE NKUDIC is a service of the National Institute of Diabetes and Digestive and Kidney Diseases and provides information about diabetes insipidus.

National Kidney Foundation (NKF)

National Kidney Foundation (NKF)
30 East 33rd St., Suite 1100
New York, NY 10016
Phone: 800-622-9010
Fax: 212-689-9261
Internet: http://www.kidney.org 
NKF seeks to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation. Its Web site provides an A to Z health guide, online brochures, and other information.

National Organization for Rare Disorders

National Organization for Rare Disorders
55 Kenosia Avenue
P.O. Box 1968
Danbury, CT 06813-1968
Phone: 800-999-6673 or 203-744-0100
Fax: 203-798-2291
Email: orphan@rarediseases.org 
Internet: http://www.rarediseases.org 
NORD is a federation of approximately 125 voluntary health organizations and over 60,000 patients, families, healthcare providers, and individuals dedicated to helping people with rare “orphan” diseases. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. NORD’s Web site provides a rare diseases database.

The Pituitary Foundation

The Pituitary Foundation
PO Box 1944
Bristol BS99 2UB
United Kingdom
E-mail: helpline@pituitary.org.uk 
Internet: http://www.pituitary.org.uk/resources/di.htm 
This United Kingdom organization provides information about pituitary disorders, including diabetes insipidus.

PubMed - a service of the National Library of Medicine PubMed, a service of the National Library of Medicine, provides access to over 12 million MEDLINE citations back to the mid-1960's and additional life science journals. PubMed includes links to many sites providing full text articles and other related resources.
The Sarcoidosis Center

The Sarcoidosis Center
Internet: http://www.sarcoidcenter.com/ 
The Sarcoidosis Center provides information for patients and physicians regarding sarcoidosis.

Worldwide Society of Wolfram Syndrome Families

Worldwide Society of Wolfram Syndrome Families
Internet: http://www.wolframsyndrome.org/ 
This organization provides support and information for people who have Wolfram Syndrome and their families. Wolfram Syndrome is sometimes referred to as DIDMOAD (diabetes insipidus, diabetes mellitus, optic atrophy, and deafness).

Pets with Diabetes Insipidus

Diabetes_Insipidus_Dogs This group is for pet owners who are dealing with Diabetes Insipidus in their dog. Hopefully this will be a venue where we can all discuss current treatments and share stories about our pets. This group was started because we have a 4 year old rescue who is being re-surrendered because of this. I have found no group out there that deals with this disorder, as rare as it is.
Encyclopedia of Canine Veternary Medical Information This site provides veterinary health information relating to dogs and cats with a section on diabetes insipidus.
Pets with DIabetes Provides information about helping your pet with diabetes insipidus, as well as, includes personal stories of pet owners whose dogs or cats have DI.
Surrounded By Cats - DI Central A website dedicated to cats and those with Diabetes Insipidus.

The Diabetes Insipidus Foundation, Inc. has provided these links as a resource to its viewers. They do not support or endorse these links.

Last Updated November 2007